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The European Huntington’s disease network (EHDN), with more than 3000 members, gather healthcare professionals, researchers and families with Huntington’s disease. Petersén was elected to the Executive Committee in 2022 and is now Deputy Chair.Link to the EHDN webpage: EHDN.org
https://www.huntington-research.lu.se/article/petersen-elected-deputy-chair-ehdn - 2026-04-19
Development of international guidelines for treatment of psychiatric symptoms in advanced Huntington's disease is in progress within the European Huntington's Disease Network (EHDN). The working group focusing on "Behavioural Phenotype” in Huntington's disease is addressing these guidelines. As part of the work, some members of the group recently met in Amsterdam, together with colleagues from USA
https://www.huntington-research.lu.se/article/work-progress-international-guidelines-treatment-psychiatric-symptoms - 2026-04-19
The month of May is Huntington’s Disease Awareness Month and 15 May was Huntington Awareness Day. Åsa Petersén was invited to take part in a podcast about the disease, together with Jozefine, who is a carrier of the gene and related to a person diagnosed with HD.The podcast is produced by YTAN, Young Together Against Neurodegenerative Diseases, a digital platform for young relatives of persons wit
https://www.huntington-research.lu.se/article/podcast-about-being-young-relative-hd-patient - 2026-04-19
The protein TDP-43 is involved in different neurodegenerative diseases, and Åsa Petersén and Sofia Bergh have investigated whether the protein harms the hypothalamus. Investigating if augmenting the quantity of the protein TDP-43 in the hypothalamus would lead to changes in the hypothalamus, emotional changes and metabolic problems was the aim of the new article from the TNU research group.Read mo
https://www.huntington-research.lu.se/article/new-paper-tnu-published - 2026-04-19
Åsa Petersén and Mahmoud A Pouladi are guest editors of the Special Issue: Glia and non-neuronal cells in Huntington's disease that was published now in August. The Special issue on Glia and non-neuronal cells in Huntington's disease holds six expert review articles. The understanding how glial and other non-neuronal cells shape HD pathology is expanding amongst researchers in the field.The topics
https://www.huntington-research.lu.se/article/petersen-guest-editor-journal-huntingtons-disease - 2026-04-19
Petersén will give a talk on her work on Huntington disease at a symposium on neurodegenerative disorders at the University of British Columbia in Vancouver, Canada on September 8, 2025. There will also be a meeting for Petersén and other partners in the JPND funded delCAA-HD research team to discuss progress of the international collaborative research efforts.
When in Sweden for their annual meeting, members of the European Huntington Association paid a visit to Lund on 28 August 2025. There they met with Åsa Petersén and Camilla Svensson, registered nurse, also working at the HD Clinic at Skåne University Hospital (SUS) in Lund, together with Åsa. Åsa showed them around the lab, demonstrated samples and talked about her research. The EHA team also got
https://www.huntington-research.lu.se/article/visit-european-huntington-association - 2026-04-19
On 9-11 September 2025 the Arturo Falaschi Conference “2nd biennial conference on TDP-43 function and dysfunction in disease” will be held in Trieste, Italy. Sofia Bergh will present her poster with the findings published earlier this summer in the article “TDP-43 overexpression in the hypothalamus drives neuropathology, dysregulates metabolism and impairs behavior in mice”.Link to the conference
https://www.huntington-research.lu.se/article/sofia-bergh-will-present-poster-tdp-43-conference - 2026-04-19
Åsa Petersén will give several talks at the conference, including one on emotions and behavior in HD, and she will also chair a session on clinical trials.The conference is arranged by the patients' organization, the European Huntington Association, and is open to all.Find out more about the conference on EHA:s webpage (opens in a new window).
https://www.huntington-research.lu.se/article/petersen-eha-conference-2025-bucharest - 2026-04-19
The National Board of Health and Welfare in Sweden has published updated information on Huntington disease on its’ webpage. These recent revisions of the text have been made by Professor Åsa Petersén, Lund University.Link to the National Board of Health and Welfare’s webpage – in Swedish only (opens in a new window).
https://www.huntington-research.lu.se/article/updated-information-hd-national-board-health-and-welfares-webpage - 2026-04-19
Professor Petersén comments on the recent positive topline results from a clinical trial with gene therapy in Huntington disease presented in a press release from uniQure. Last week, positive topline results from a clinical trial with gene therapy in Huntington disease were presented in a press release from uniQure. The news hit the headlines and spread fast through the HD community. Read Professo
https://www.huntington-research.lu.se/article/perspective-recent-positive-topline-results-gene-therapy-trial - 2026-04-19
The Swedish channel TV4 published the news on the HD clinical trials that were positively described in media in late September. Professor Åsa Petersén was interviewed about the findings by TV4 and she emphasizes the need for cautiousness when interpreting the results, as they are not yet published in a scientific magazine or reviewed by researchers not involved in the study. Link to the article on
https://www.huntington-research.lu.se/article/tv4-news-piece-hd-gene-therapy-trial - 2026-04-19
Petersén is invited to give a talk at the 2025 Family Gathering for the Scottish Huntington's Association with around 170 attendees on November 8, 2025 in Glasgow.Link to the programme at the association’s webpage (opens in a new window)
https://www.huntington-research.lu.se/article/petersen-gives-talk-scottish-huntingtons-association-meeting - 2026-04-19
The Swedish patients' organisation, RHS, held their yearly meeting in October 2025 and Professor Åsa Petersén was invited speaker. Petersén's talk addressed early symptoms in HD connected to research. The meeting was recorded and the films are now available on RHS' website.Link to the content at RHS' website - in Swedish only (opens in a new window)
https://www.huntington-research.lu.se/article/petersens-talk-rhs-meeting-2025 - 2026-04-19
Jennifer Oraha, PhD student in Åsa Peterséns's research group, has her first publication out. The article is based on her study of the effects of overexpression of TDP-43 or mHTT in AgRP-expressing neurons on metabolic, behavioral and neuropathological features in mice.FTD/ALS and HD share early traits when it comes to altered metabolism and psychiatric symtoms, and it has been suggested that thes
https://www.huntington-research.lu.se/article/congratulations-jennifer-her-first-publication-phd-student - 2026-04-19
Åsa Petersén has been interviewed by the website “Vetenskap & Hälsa” (Science & Health) about Huntington’s disease and the ongoing research to find a future treatment. Recent research has come up with some interesting findings, which are crucial for the development of efficient treatments.Link to the pod on the Vetenskap & Hälsa website – in Swedish only (opens in a new window)
https://www.huntington-research.lu.se/article/pod-huntingtons-disease-asa-petersen - 2026-04-19
For the first time ever, the four Swedish patients’ organizations for Alzheimer’s, Huntington, Parkinson’s and ALS are arranging a joint conference on neurodegenerative diseases. Åsa Petersén, Professor and Senior Consultant in Psychiatry, and Håkan Widner, Professor and Senior Consultant in Neurology, both active at the Huntington Disease Centre in Lund, will be taking part in a panel discussion
https://www.huntington-research.lu.se/article/mds-huntington-centre-lund-take-part-swedish-conference - 2026-04-19
Interested in spending a couple of days in Sigtuna to write together with peers in a beautiful environment and discuss your writing with senior scholars? The retreat takes place at Stora Brännbo Konferens och Hotel and starts in the late afternoon on the 13th of May and ends in the afternoon of the 15th of May. The graduate school will pay for your travel and the stay at the retreat. Deadline to a
https://www.graduateschoolasianstudies.lu.se/article/writing-retreat-may - 2026-04-19
Want to stay up-to-date on Asian affairs and research in the Nordics and beyond? Tune in to the Nordic Asia Podcast! The Nordic Asia Podcast is a collaboration between the following academic partners: Asia Centre, University of Tartu (Estonia), Asian Studies, University of Helsinki (Finland), Centre for Asian Studies, Vytautas Magnus University (Lithuania), Centre for East Asian Studies, Universit
New deadline 15 April. At this workshop, led by Altitude Meetings, and co-organised with the Graduate School in History, you will get practical advice in a workshop format on how to become a better speaker.The workshop takes place on 22 May at Stadshallen in LundSee here for more information
